Media Statement
“March is global Endometriosis Awareness Month and as we recognise it here in
Aotearoa New Zealand, we do so through this year’s theme Let’s Talk Endo:
Opening Conversations, Inspiring Understanding, Empowering Change,” says
Endometriosis New Zealand Chief Executive Tanya Cooke.
“Our campaign that launched today is all about breaking the silence on what is
really a common, yet often misunderstood condition.”
“By fostering honest conversations about symptoms, impacts, and personal
experiences, we are seeking to enable early recognition, improve access to care,
and build a community that challenges stigma. In this way we can turn
awareness into actionable, meaningful change.”
Endometriosis occurs when tissue similar to the lining of the uterus is found in
places outside the uterus. Symptoms can include significant period pain, bowel
issues and infertility.
Endometriosis affects approximately 1 in 10 women, girls and those assigned
female at birth. In New Zealand this means around 120,000 people are currently
living with the condition.
“Unfortunately, New Zealand has a patchy record when it comes to treating and
caring for those with endometriosis,” Cooke says.
“The average delay to diagnosis for someone with endometriosis is nearly 10
years, care is inconsistent with prolonged wait times for specialist consultations,
and current treatments can be expensive and difficult to access.”
“To make real progress on these issues Endometriosis New Zealand is urging the
Government to adopt a National Endometriosis Action Plan similar to what they
have in Australia. This would allow prioritisation of some key steps that would
improve outcomes including better education and awareness for primary
healthcare professionals, training more specialists and providing improved
access to treatment.”
“As part of Endometriosis Awareness Month, we are encouraging people to take
on a ‘120 Challenge’ to support the 120,000 New Zealanders with
endometriosis,” Cooke says.
“It could be baking 120 cookies, running 120 kilometres, walking 120,000 steps
or switching off your devices for 120 hours. It’s really easy to take part, you just
sign up, set your challenge and then set your fundraising goal.”
“All funds raised go to Endometriosis New Zealand to help us provide and grow
our information, education and advocacy services.”
Endometriosis New Zealand is also running events in a number of major centres,
as well as one online, to help those with endometriosis and family and
supporters share their personal stories and experiences. You can sign up for
events here: Events – Endometriosis New Zealand.
About Endometriosis New Zealand
Endometriosis New Zealand is the national organisation for endometriosis –
dedicated to providing advocacy, information, education, and awareness on
endometriosis. We are committed to improving the lives of individuals impacted
by this condition and helping them find a way forward with hope and strength.
Contact:
Tanya Cooke (she/her)
Chief Executive
Mobile: 027 255 1306
Email: tanya@nzendo.org.nz