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Welcome to the official Endometriosis New Zealand website

If you’re seeking more information about endometriosis, you have come to the the right place. Here, you can learn more about the condition, find evidence-based best practices for treatment and management and learn self-management strategies.

Whether you’re looking for support, advice, free resources and events or to connect with a community of individuals with shared experiences, Endometriosis New Zealand is here for you.

Sign up as a member to receive regular emails featuring the latest research findings, news articles, and other important, accurate, and up-to-date materials on endometriosis.

Endometriosis New Zealand is Aotearoa’s national endometriosis organisation, providing support, advocacy, research, information, education and awareness on endometriosis. We provide practical and emotional support to encourage those living with endometriosis to take control of their condition and to feel heard.

Endometriosis in the workplace

We place huge value on sharing stories of lived experiences of endometriosis, to highlight the realities of managing this condition. As a part of our Endometriosis in the Workplace Campaign, we connected with 5 brave individuals who were willing to share their experience managing their condition in their workplace environment. These videos were created as Q&A's hosted by our incredible Endometriosis New Zealand Ambassador Susie Ferguson. You can watch all of the videos on our YouTube account below.

2025-2026 Research Project

Endometriosis New Zealand, in partnership with the University of Canterbury, is launching a major research study on the barriers and facilitators of endometriosis management in Aotearoa New Zealand. This significant project will capture the lived experiences of people with endometriosis through a national survey series. The research aims to gain a broader understanding of the impacts of diagnosis, treatments, care, awareness and interactions with medical practitioners on endometriosis patients, as well as the impacts of endometriosis on work lives, education, relationships and finances.

News Blog

Keep up to date with our news and media stories

Running for Change: Ruby Langstone’s 120 Challenge for Endometriosis Awareness

March 5, 2026

We sat down with 120 Challenger Ruby Langstone, who is living with stage four endometriosis, to talk about her journey, the validation that came with finally receiving a diagnosis after years of misdiagnoses, and why she is passionate about raising awareness.

Felicity’s making 120 wheat bags!

Endometriosis New Zealand Board Chair Felicity Evans is taking on the 120 Challenge with her family by hand making 120 wheat bags to provide comfort and relief for those suffering from the symptoms of endometriosis.

Is surgery necessary for my endometriosis or ‘suspected’ endo?

March 4, 2026

If you live with pelvic pain, period pain, sex or bowel symptoms, you may have been told you could have endometriosis, and that surgery is the “gold standard” for diagnosis and treatment.

Endo Drop Squad jumping out of their comfort zone

Taryn and her daughter Kayla have formed a team called the Endo Drop Squad to take on the 120 Challenge in one of the boldest ways possible, a 12,000-foot skydive over Taupō.

Supporters

Endometriosis New Zealand is thankful to all of our amazing sponsors. See who sponsors us by clicking here.