Exploring the facilitators and barriers to diagnosis of endometriosis in Aotearoa New Zealand
Primary researcher: Briana Wallis, Massey University
Supervisor: Dr Kathryn McGuigan
This research project seeks to explore the facilitators and barriers to the timely diagnosis of endometrios1s in Aotearoa New Zealand.
They looking for women who are aged 18 years or older who have a confirmed diagnosis of endometriosis to share their journey to receiving a diagnosis in Aotearoa New Zealand.
Participants will be required to complete an online survey that will take approximately 30 minutes. As a thank you for your participation, upon completion of the survey participants can enter the draw to win a $100 Prezzy card.
If you have questions or concerns, please do not hesitate to contact Briana.
Primary researcher: Francesca Hearn-Yeates, University of Edinburgh
Under the supervision of Professor Andrew Horne and Professor Philippa Saunders.
Francesca Hearn-Yeates is a PhD student at the University of Edinburgh working under the supervision of Professor Andrew Horne and Professor Philippa Saunders, researching the relationship between diet, the gut microbiome, and pain, in endometriosis.
She has recently launched an international online survey as part of her project to gather information on typical diets and supplements used by people with endometriosis, the perceived benefit of the diets, and where they sourced the information and advice to adapt their dietary habits.
They have heard a lot of anecdotal evidence from patients in the UK about the benefits of different dietary modifications and therefore the aim of her PhD project is to provide a basis of clinical evidence. This survey will identify the range of different diets and supplements used and associated trends with pain levels.
It is completely anonymous and should only take around 10 minutes to complete.
The survey link is: https://corexmsx3mfhpx69skzk.qualtrics.com/jfe/form/SV_5v61270ROh5AKTc
By Jordan Tewhaiti-Smith, Alex Semprini, Deborah Bush, Augustus Anderson, Allie Eathorne, Neil Johnson, Jane Girling, Michael East, Joy Marriott & Mike Armour
Endometriosis New Zealand partnered with the Medical Research Institute of New Zealand (MRINZ), Gynaecology Group and Repromed, Canterbury District Health Board, University of Otago, University of Auckland, Te Herenga Waka — Victoria University of Wellington, Oxford Women’s Health at Forté Health, and Western Sydney University’s NICM Health Research Institute and Translational Health Research Institute to develop the study ‘An Aotearoa New Zealand survey of the impact and diagnostic delay of endometriosis and chronic pelvic pain’.
Experiences with Endometriosis and Polycystic Ovary Syndrome in Aotearoa New Zealand
Dr Jane Girling
Department of Anatomy Senior Lecturer
Any questions please email firstname.lastname@example.org
Polycystic Ovary Syndrome (PCOS) and endometriosis are two common conditions affecting many individuals in our community. While these two conditions are known to co-occur, no research has been conducted to understand how they interact and the consequences this can have.
We are looking for participants for a study that begins to untangle PCOS and endometriosis. We’d like to hear from you if you have been diagnosed with PCOS and/or endometriosis, are 18 years of age or over and living in Aotearoa New Zealand and are willing to tell us about your experience with PCOS and/or endometriosis. The study will involve an anonymous 20-minute online survey and ask you a range of questions about your experiences, symptoms, diagnosis, and treatment.
Experiences of chronic pelvic pain in Aotearoa New Zealand
Professor Virginia Braun
School of Psychology, The University of Auckland
School of Psychology, The University of Auckland
Chronic pelvic pain (CPP) research in Aotearoa New Zealand, as with the rest of the world, is a small but growing field, and the impacts of CPP on life are starting to be acknowledge and understood, within and beyond the healthcare professions. Despite some shifts, CPP remains relatively poorly understood, both in terms of life impacts and in relation to experiences related to acknowledgement and treatment of the condition. Seeking diagnosis and healthcare is often complex and challenging. This research aims to build in-depth understanding of the realities of CPP and its impacts on everyday life, as well as healthcare experiences, to better inform healthcare practices in Aotearoa New Zealand.
Aims and objectives
If you are interested please read the below information, and contact Michaela Callaway, email@example.com, to register your interest.
Exploring the needs and experiences of young women in New Zealand / Aotearoa with period symptoms
Primary Investigator: Dr Theresa Mittermeier
Clinical Fellow, Department of Obstetrics & Gynaecology General Practitioner
Endometriosis New Zealand (ENZ) is committed to facilitating and supporting research to develop a greater understanding of women’s health issues, particularly relating to endometriosis.
We are to inviting you to help in the recruitment for a study conducted by researchers at the University of Auckland (Dr Theresa Mittermeier, a GP, Dr Joy Marriott and Dr Wendy Burgess gynaecologists) along with Dr Mike Armour, a senior health researcher at Western Sydney University and Deborah Bush, Founder of Endometriosis NZ
The aim of the study is to improve the understanding of the symptoms and experiences of young people with periods in New Zealand / Aotearoa. Many young people experience symptoms such as pain or heavy bleeding with their period which may affect many areas of their life, such as their studies, social activities, mood and confidence. We are looking to improve the education and health care young people receive about periods. The research team understands that some people who have periods do not identify as female. This survey is open to people of all genders who have periods.
To be able to take part in this study, participants need to be:
As thanks, you can opt-in to enter a draw to win one of two $100 Farmers Vouchers.
If you think a school, or organisation may be able to help, they can download the poster with a QR code for the survey.
Transgender Men’s Experience of Living with Endometriosis: A Hermeneutic Phenomenological Study
Phone or whatspp: +36707242313
The aim of this study is to explore the experience of transgender men living with endometriosis. This research may fill a gap in understanding this disease’s impact on transgender men; and living with a disease that is associated as primarily a woman’s disease.
In this proposed study, I will explore the aim of the study by means of the following four objectives:
The experience of young females in New Zealand with a diagnosis of endometriosis
Chloe now has enough participants and she thanks everyone that made contact with her.
We would like to thank those of you who participated in this incredibly important study. Your efforts will provide NZ data to support our efforts to improve health outcomes for those with endometriosis and adenomyosis, with Government and the Ministry of Health. We appreciate this so much. What happens now is that the manuscripts have to go through a very robust process to analyse the data which will likely take months. We will keep you in touch with developments when we are advised by the lead researchers.