Transgender Men’s Experience of Living with Endometriosis: A Hermeneutic Phenomenological Study

Cheryl Eder

Phone or whatspp: +36707242313

Research Aim and Objectives

The aim of this study is to explore the experience of transgender men living with endometriosis. This research may fill a gap in understanding this disease’s impact on transgender men; and living with a disease that is associated as primarily a woman’s disease.

In this proposed study, I will explore the aim of the study by means of the following four objectives:

  • To explore the effect the transgender male with endometriosis experiences in living with a disease that is primarily associated as a woman’s disease.
  • To gain an understanding of the experience of psychosocial support received and gaps in support of transgender men with endometriosis.
  • To explore how transgender males with endometriosis perceive their healthcare in relation to endometriosis.
  • To explore how transgender males with endometriosis experience their integration and reception into the endometriosis community, with the majority of endometriosis patients consisting of women.

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The experience of young females in New Zealand with a diagnosis of endometriosis

Chloe now has enough participants and she thanks everyone that made contact with her.


We would like to thank those of you who participated in this incredibly important study.  Your efforts will provide NZ data to support our efforts to improve health outcomes for those with endometriosis and adenomyosis, with Government and the Ministry of Health.  We appreciate this so much.  What happens now is that the manuscripts have to go through a very robust process to analyse the data which will likely take months. We will keep you in touch with developments when we are advised by the lead researchers.


ENZ fosters research and evaluates and audits its programmes through assessment systems, peer review and Quality Assurance controls. Members of the ENZ Trust Board have made a significant contribution to endometriosis related research and investigations and are widely published.

Endometriosis Education in Schools: A New Zealand model.

Endometriosis Education in Schools
The ME Text programme research is now published in ANZJOG (Australia New Zealand Journal Obstetricians and Gynaecologists).

The report is the first piece of literature of its kind globally which examines the outcomes of a health education programme in schools and assesses whether it makes a difference.

ME Text was a concept which sprang to life in 1997 – two decades ago! It is now a proven educational program and well accepted in secondary schools in New Zealand. It has reached hundreds of thousands of students throughout the country. This news will hopefully influence change for girls and young women who have symptoms suspicious of endometriosis.

Endometriosis education in schools: A New Zealand model examining the impact of an education program in schools on early recognition of symptoms suggesting endometriosis.

Endometriosis New Zealand

Endometriosis NZ Research

Our CEO Deborah Bush is a co-author of the widely acclaimed ‘The $6 Billion Woman and the $600 Million Girl’ report released in 2011. This report was an Australian initiative to address human and fiscal burdens associated with conditions causing pelvic pain. Help support ENZ research. Help us help others by contributing to ENZ research projects.  This is a way to bring to the attention of government and decision makers to change ‘what is’ into ‘what should be’.

Patient Partnering at MidCentral DHB has been independently assessed. The outcomes strongly support the programme. (K. Renner and P.V. Stephens.  Post-thesis research. Massey University)  (K. Renner and P.V. Stephens. 2009).

Consensus on current management of Endometriosis

The First global consensus on endometriosis published in Human Reproduction Hum Reprod 2013 [Epub]Johnson NP and Hummelshoj L et al;. Fifty-six representatives of 34 national and international organisations, came together in the consensus meeting in Montpellier in 2011, to agree on the current management of endometriosis. The group met again in Brazil and is working on another manuscript which will add to the literature and pragmatically help patients and clinicians alike.

What is of huge significance is that Endometriosis NZ played a central role in this World Endometriosis Society initiative.  Ms Deborah Bush QSM represented endometriosis organisations worldwide and Dr Neil Johnson was primary author of the consensus document on behalf of the World Endometriosis Society.  Professor Cindy Farquhar was also involved as a presenter. The consensus allowed different perspectives to be heard in one forum around the same table: clinicians, surgeons, scientists, women with endometriosis, and industry – women’s voices which had previously not been heard.  Whilst maintaining its services and programmes, ENZ will continue to work with others at this unprecedented level to ensure improved health outcomes for all women and girls with endometriosis. continually updates international research, forums, interviews, papers and articles, providing an in-depth and current overview

World Endometriosis Research Foundation (WERF)
The World Endometriosis Research Foundation (WERF) was created in 2006 as the first global charity to foster research in endometriosis to improve knowledge and treatments. It has a vision of a day when no woman is crippled by endometriosis nor prevented by the disease from having children.  ENZ supports the efforts of this global research foundation.

Strength through support - mā te tautoko, ka whai kaha, ka ora

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