Endometriosis New Zealand Statement – July 2024
We believe that the recent statement by ANZCA on persistent pelvic pain management does not fully reflect the perspectives and experiences of endometriosis patients. While we support the importance of a multidisciplinary approach to managing persistent pelvic pain, we are concerned that the dismissal of the need for an endometriosis diagnosis may lead to further marginalisation of those suffering from this condition.
Endometriosis is a complex and often debilitating condition that can only be definitively diagnosed through laparoscopy. For many patients, obtaining a diagnosis is a crucial step in their healthcare journey. It can be validation for their pain, provides clarity, and open the door to care and treatment that can improve their quality of life. The absence of a diagnosis can leave patients feeling dismissed, unheard, and without a clear path forward.
The average diagnostic delay for endometriosis is already far too long—New research by the University of Canterbury and Endometriosis New Zealand includes a study of the largest cohort of endometriosis patients ever in New Zealand and reveals an average diagnosis delay of 9.7 years per patient, up from 8.7 years in 2022.
This delay can worsen physical and emotional challenges and can negatively impact the patient’s ability to access appropriate care.
By downplaying the importance of diagnosis, we fear that this delay may only increase, leaving more patients in limbo without the answers they desperately seek.
While we recognise the value of a multidisciplinary approach to managing persistent pelvic pain, we strongly advocate for the inclusion of endometriosis diagnosis as an important component of this approach. A diagnosis not only aids in developing an effective treatment plan but also affirms the experiences of those living with endometriosis. We urge healthcare providers and policymakers to consider the voices of patients and the importance of timely and accurate diagnosis in the management of this chronic condition.
About Endometriosis New Zealand
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and represents the tens of thousands of girls, women and those assigned female at birth who live with endometriosis. We work with those who treat the condition and researchers to find solutions. We also provide unique and professional services and programmes to reach individuals, communities, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
The research paper: A decade to wait: Update on the average delay to diagnosis for endometriosis in Aotearoa New Zealand. HERE.