We sat down with Eden Amende, Future Director on the Endometriosis New Zealand Board, to talk about her journey to diagnosis and what living with endometriosis has meant for her. In this Q&A, Eden reflects on the challenges of reaching a diagnosis, the personal insights the condition has given her, and how those experiences continue to shape her outlook on advocacy, resilience, and the future.
We sat down with 120 Challenger Ruby Langstone, who is living with stage four endometriosis, to talk about her journey, the validation that came with finally receiving a diagnosis after years of misdiagnoses, and why she is passionate about raising awareness.
Endometriosis New Zealand Board Chair Felicity Evans is taking on the 120 Challenge with her family by hand making 120 wheat bags to provide comfort and relief for those suffering from the symptoms of endometriosis.
If you live with pelvic pain, period pain, sex or bowel symptoms, you may have been told you could have endometriosis, and that surgery is the “gold standard” for diagnosis and treatment.
Taryn and her daughter Kayla have formed a team called the Endo Drop Squad to take on the 120 Challenge in one of the boldest ways possible, a 12,000-foot skydive over Taupō.
Endometriosis New Zealand Chief Executive Tanya Cooke and patient advocate Tae Foley have both shared their insights on endometriosis with … Continued
March marks Endometriosis Awareness Month with this year’s theme, ‘Your Story Shaping Our Future,’ highlighting the powerful role that lived … Continued
Endometriosis New Zealand co-founder Deborah Bush MNZM, QSM has been internationally recognised for her work supporting people living with endometriosis, … Continued
Endometriosis New Zealand has submitted applications to Pharmac seeking public funding for two important hormonal treatments for endometriosis – Visanne … Continued
Originally published by Sophie Neville for Woman’s Weekly, December 4, 2025 As a talkback radio host, Newstalk ZB presenter Tyler Adams is … Continued
Originally published by New Zealand Doctor | Rata Aotearoa on 10 December 2025 Aotearoa New Zealand’s first national cost-of-illness estimate … Continued
A new study has just been released, examining the true cost of endometriosis for New Zealanders living with the condition, … Continued