Winter Endometriosis New Zealand Newsletter 2018

Kia ora and welcome

Everyone Belongs

 

The ha, or breath of life known in New Zealand as the hongi, is a very special, spiritual greeting and a unifying gesture where everyone belongs.

This is an image we are now using on our website to greet you all, to share experiences, knowledge and support. We tried to deliver that in bucket loads during our March Endometriosis Awareness

Campaign. If you missed any video clips, cozy up on the couch and watch all of our videos and check out the new website while you’re there.

You’ve asked us to create a place for sharing stories. We listened, and we’ve done just that – Story Forum. Sharing stories is one way of helping yourself and offering support to others.

Every season our newsletter will be filled with Endometriosis New Zealand (ENZ) updates, relevant topics, expert opinions and upcoming dates… so exciting. We hope you love it as much as we do.

xo ENZ Team

P.S. We acknowledge all of our fantastic sponsors.

 

Ask ESIG: Endometriosis Special Interest Group.

ESIG is our team offering expertise in the treatment and management of endometriosis. Have you checked out these files on our website?

We have a page filled with Ask ESIG questions and answers on our website, for example:

  • Endometriosis and Exercise
  • Anti-inflammatory diet and endometriosis symptoms
  • Adenomyosis
  • Advice for adolescents with period pain and other symptoms

The Ask ESIG files are current, easy to follow responses from the ESIG experts. Go to our Ask ESIG page for more questions and answers.

 

The Pill – Facebook Question:

 

We want to know if you were prescribed the pill in your teens or early 20s for bad periods and were then diagnosed with stage 3 or 4 endometriosis down the track. This will help us with our work with the Ministry of Health and is also being prepared for a media story.

We received hundreds of replies to this recent Facebook post. There is still time for you to go to our ENZ Facebook page to share your experiences with the pill.

 

Living Better with Endo

By: Dr Sallie Sarrel

Having an endometriosis flare?

Inhale-Exhale-Repeat. Pain often makes the breath shallow. Shallow breath doesn’t provide the muscles or the organs with all the oxygen they need. Shallow breath affects the patient with endometriosis.

The pelvis is filled with a sling like muscle group called the pelvic floor. The muscles of the hip, back and even foot also affect the pelvis. Women with endometriosis more often or not will have an overactive, hypertonic or tight pelvic floor.

When endometriosis pain flares, that tightness increases. During a flare, signals in the brain also flood the system, amping up the volume on pain and inflammatory mechanisms.

If our trunk is like a house. Then the diaphragm or the breathing muscle is the roof. The abdominal muscles and core are the walls and the pelvic floor is the foundation. We want a house where everyone feels safe and healthy. What happens in one area of the house, affects the other. If you breathe shallowly, your foundation cannot get the length it needs to support you. This perpetuates back and pelvic pain. Additionally, shortened breaths increase anxiety, which then increases pain and shortens breath more perpetuating the cycle.

Find a quiet space, get comfortable and breathe. With each inhale imagine your pelvis fully opening like the ripples you see when you drop a pebble in the water. With each exhale imagine the pain leaving your body. Simple yes, but your pelvic floor and your central nervous system may thank you.

Dr. Sallie Sarrel is a Pelvic Pain Physical Therapist specialising in endometriosis in the United States. For more information please contact her at: www.salliesarrel.com

Visit Ask ESIG files for practical info on managing pelvic pain.

 

Sylvia Freedman from EndoActive, is doing some great work around endometriosis.

We really like this piece of research and we thank her for allowing us to share. www.endoactive.org.au

Click here to view below image larger

 

 

Strength through support - mā ta tautoko, ka whai kaha, ka ora

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